Bowel Moments

Send us Fan Mail A Crohn’s diagnosis at eight can shrink a kid’s world down to fatigue, fear, and the nearest bathroom. Nicole Thornton took that same reality and built something bigger: community, advocacy, and a blueprint for how young people with IBD can lead without pretending it’s easy. We talk through Nicole’s early health journey and the moment Camp Purple Live in New Zealand changed everything by giving her friends who truly understood Crohn’s and colitis. From there, Nicole shares how she petitioned the New Zealand Parliament at just 12 years old to improve toilet access for people with inflammatory bowel disease and other urgent health needs, and how that effort evolved into the “I Can’t Wait” campaign where busin esses voluntarily welcome patients to use staff bathrooms. We also dig into the everyday stakes behind “bathroom access” and how stigma and public accidents can shape mental health, confidence, and relationships. Nicole also brings a global lens from her work with the International Federation of Crohn’s and Ulcerative Colitis Associations (IFCCA) youth group, including what she’s learned about medication access, healthcare funding, and how different countries support young patients. Finally, we get into why she’s studying nursing, how small acts of care can change someone’s life, and what it takes to balance advocacy, school, work, and chronic illness without burning out. If you care about Crohn’s disease, ulcerative colitis, chronic illness advocacy, bathroom accessibility, or patient leadership, hit subscribe, share this with a friend, and leave a rating and review so more people can find the show. Links: Camp Purple Live- Crohn's & Colitis New ZealandIFCCA- Youth GroupArticle on Nicole's NZ parliamentary effortsStory on CCNZ on Nicole's trip to Brussels Let's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

Send us Fan Mail A lot of IBD news sounds like it should change your care tomorrow and then… nothing changes at your next appointment. We wanted to close that gap, so we invited back Dr. Victor Chedid and Dr. Iris Wang from Mayo Clinic in Rochester, MN for a Research Rroundup that’s honest about what’s exciting, what’s early, and what still has major caveats for real people living with Crohn’s disease and ulcerative colitis. We dig into emerging data on GLP-1 agonists like semaglutide and tirzepatide and why several retrospective studies are turning heads with signals for fewer hospitalizations and less steroid use in IBD patients. We also get specific about the “who should not use this” question, including risks for people who are underweight or have disordered eating concerns, and why multidisciplinary support with an IBD dietitian can matter. Robin also raises a practical angle many patients care about: whether GLP-1 medications could help slow gut transit for high ostomy output or pouch output, and what makes insurance approval so challenging. From there, we talk breakthroughs that could reshape the long game of Crohn’s care: fibrostenotic Crohn’s disease and strictures. An antifibrotic drug targeting intestinal fibroblasts is showing early promise, and we walk through what a phase 2 trial result really means, plus why it can still take years before a therapy becomes available in clinic. We also explore the surprising two-way relationship between sex hormones and the gut microbiome, what that could imply for symptom patterns, and why microbiome testing and “fix your gut” products often outrun the evidence. We end with what makes us hopeful over the next five years: better biomarkers, precision medicine, and AI in gastroenterology, paired with a clear warning about bias and why ChatGPT-style tools can confidently generate misinformation. If you found this helpful, subscribe, leave a review, and share the episode with someone who needs a clear-eyed update on IBD research. Links: Information from Mt. Sinai about GLP-1 Medications and IBDPreventing Fibrosis in IBD: Update on immune pathways and clinical strategiesLet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

Send a text Your baby is bleeding, no one has a clear answer, and you’re expected to make high stakes decisions while running on zero sleep. That’s the reality Andrea Potvin lived when her daughter developed bloody stools at five months old and was ultimately diagnosed with ulcerative colitis at just 10 months old, a form often described as very early onset IBD (VEO-IBD). We talk through the winding road to diagnosis, the crushing pace of pediatric hospital life, and what it’s like to try medication after medication while your child becomes dangerously anemic. Andrea shares how her family kept pushing for more opinions, searched for doctors with deeper IBD experience, and stayed data-driven with notebooks, symptom tracking, bloodwork, and stool tests. We also dig into diet therapy, including how they implemented the Specific Carbohydrate Diet (SCD) in a staged way and why monitoring inflammation markers like fecal calprotectin still matters when things look “better.” Andrea also explains why they added functional and integrative care, what functional stool testing showed, and how mental health support became essential for the whole family. Then we get practical about the everyday stuff: school lunches, restaurants, birthday parties, and teaching a five-year-old how to advocate for her own food needs without feeling isolated. That journey eventually led Andrea and her husband, Nick to start Moon & Co Wellness, their wellness brand built to help other families feel less alone. Subscribe for more real talk about IBD, share this with someone who needs hope, and leave a review so more families can find these stories. Links: Moon & Co Wellness on InstagramComparing and Contrasting Therapeutic Diets for IBDInformation on VEO IBDLet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

Send a text Ever been told your pain is “just a flare,” even when your labs look calm? We sit down with Mayo Clinic gastroenterologist Dr. Xiao Jing (Iris) Wang to unpack why symptoms can linger after inflammation is under control—and what to do about it. From constipation myths to the real mechanics of bloating, this conversation reframes gut discomfort through muscles, nerves, and breath, not just meds. Dr. Wang breaks down pelvic floor function in clear, memorable language. Learn how the puborectalis sling preserves continence, why years of urgency or “holding it” can hardwire a constant clench, and how that leads to straining and incomplete emptying. She shares practical paths to diagnosis without over-reliance on expensive tests, smart ways to find qualified pelvic PT, and simple at-home tactics like an optimized toilet posture, the “anti‑Kegel,” and biofeedback fundamentals. We also explore why J‑pouch patients need their own testing norms and a different definition of “normal.” Then we tackle bloating. Groundbreaking research shows many visibly distended bellies aren’t full of excess gas—the diaphragm is pushing down while the abdominal wall pooches out. Dr. Wang demonstrates how diaphragmatic breathing can retrain this pattern and why yoga, gentle twists, and abdominal massage move trapped gas better than most medications. Finally, we zoom out to the brain. When the gut’s “fire” is out but the alarm keeps blaring, neuromodulators, gut-directed hypnotherapy, and virtual reality can close the pain gates. You’ll hear how VR helps patients navigate bathroom anxiety, tolerate unsedated procedures, and feel safer in their own bodies. Finally we talk to Dr. Wang about the genesis of her children's book called "Boo Can't Poo." It's a humorous story about a constipated ghost named Boo and his efforts to get his bowels back on track. It's a great read for parents who are working to potty train their toddlers but also for all us to re-learn how to poo! If you’ve wondered whether your pain is real when scans look fine, this is your validation and your roadmap. Subscribe, share with a friend who needs it, and leave a review to help more listeners find practical relief and a new way to think about gut health. Links: Boo Can't Poo bookYoga poses for constipationMore yoga poses for constipationResources on disorder of the gut-brain axis and more from GI PsychologyLet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

Send a text When your scope looks great but your day still falls apart, something’s missing. We sit down with Dr. Dawn Beaulieu, a Vanderbilt IBD specialist certified in functional medicine, to unpack a root-cause approach that complements biologics and brings relief where patients feel it most: sleep, fatigue, bowel consistency, and energy. We get specific about what functional medicine actually is—science-based, holistic, and individualized—then trace how Dr. Beaulieu integrates it into a busy academic IBD center. From the “functional medicine tree” and Five Rs to team-based care with dietitians and social workers, she shows how nutrition, hydration, and nervous system training shift the gut-brain axis. We talk real-world food strategies that work for sensitive guts, why ultra-processed ingredients and dyes upset the microbiome, and how to ramp fiber without misery. She shares outcomes from Vanderbilt’s group programs, where patients improved quality-of-life, sleep, and fatigue in about twelve weeks, with some showing lower fecal calprotectin. We also tackle supplements with nuance: which nutrients many IBD patients actually need, how to choose third‑party tested brands, and why you can’t out-supplement a bad diet. Dr. Beaulieu sets clear lines on when medication is essential for moderate to severe disease, then explores where GLP‑1 drugs may help overweight patients alongside standard care. Access matters too, so we highlight ways to find certified functional medicine providers, piece together a local team, and use tools like HRV training and Nerva to build daily resilience. This is a grounded, empowering roadmap for anyone stuck between “remission” and “feeling well.” If the goal is fewer flares and more life, these are the levers you can pull today—without abandoning the therapies that work. Follow the show, share this episode with someone who needs a nudge toward better routines, and leave a review to help more people find the conversation. Links: Find a practitionerFunctional Medicine and Inflammatory Bowel DiseasePodcast with Dr. Beaulieu on FMP EssentialsPodcast episodeLet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

Send us a text Remission rates don’t rise by accident—they rise when people, data, and purpose align. This week we were joined by our friend Becky Johnson Rescola, Executive Director and President of Improve Care Now (ICN), to unpack how a learning health network is transforming pediatric IBD care through shared data, quality improvement, and genuine partnership with families. We trace ICN’s journey from ten centers in 2007 to a 100+ site network with a registry tracking over 33,000 active kids and young adults. Becky explains how consistent measurement and coaching improved remission rates, with growing emphasis on sustained and steroid‑free remission. You’ll hear a real-time example of change in motion: a shared decision-making tool piloted at eight centers to help families weigh adalimumab plus methotrexate, reflecting registry findings that combo therapy speeds remission with adalimumab but not infliximab. We also dig into how registry data supports off‑label insights, helps sponsors understand pediatric outcomes, and even flags potential trial participants through privacy‑preserving queries. Beyond medications, we explore EMR integration with Epic to reduce data burden, targeted efforts to close gaps in race and ethnicity fields to spot disparities, and the network’s commitment to co‑producing resources with patients and parents. Becky brings the community to life through ICN’s conferences—scholarships, learning labs, and a welcoming vibe that empowers quieter voices to speak up and help set the agenda. From very early onset IBD and tailored transition to adult care, to smarter partnerships across GI and related conditions, the path forward is both practical and ambitious: make evidence usable, make participation easy, and make sure every child benefits whether or not they’re seen at an ICN center. If this conversation sparks ideas or gives you hope, help us spread the word—follow the show, share it with someone who needs it, and leave a review with the question you want us to tackle next. Links Improve Care Now's websiteICN- Tools and resources for patients and parentsLet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

Send us a text A mouse who can’t eat cheese and an owl who loves her anyway—sometimes the simplest stories hold the biggest truths. We welcome author MB Mooney to share how The Mouse Who Couldn’t Eat Cheese grew from the life and legacy of Alex, a bright, owl‑loving kid who lived with Crohn’s disease and inspired a foundation, Beautiful Beyond the Pain. Instead of a medical explainer, MB wrote a friendship-first tale that helps children understand invisible illness, practice empathy, and see vulnerability as a path to connection. We open up the creative process behind writing for kids and parents at once: crafting a title that hooks curiosity, choosing scenes that feel honest, and striking a tone that respects young readers without sanding down the hard parts. MB explains why children’s books are tougher than they look, how early readers—many without any IBD connection—found universal meaning in the story, and what it takes to put your heart on the page when criticism is part of the job. For aspiring authors in the chronic illness community, he shares a practical roadmap: draft freely, revise with audience in mind, find a writing group for accountability and critique, and build resilience for the inevitable one‑star review. We also look ahead to future volumes featuring Alex the Owl, including a potential ADHD story drawn from MB’s family experience. Along the way we talk about making invisible illness visible, helping kids self‑advocate, and why every community benefits when friends learn to meet each other’s needs with flexibility and care. If you’re a parent, patient, educator, or creator looking for stories that heal and tools that help, this conversation is a warm, grounded guide. If the episode resonates, follow the show, share it with a friend, and leave a quick review—your support helps more listeners find thoughtful conversations like this one. Links: MB Mooney's websiteThe Mouse Who Couldn't Eat CheeseCamp OasisA longer interview with MB about his bookLet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

Send us a text What if the decision you feared most was the one that finally set you free? We sit with Gaylyn Henderson—writer, model, and founder of Gutless and Glamorous—to trace her path from a swift, severe Crohn’s diagnosis at fourteen to an ostomy that gave her health, energy, and a voice loud enough to change minds. Gaylynn opens up about the early years when prednisone and 6MP were the only options and hospital stays collided with high school milestones. She explains how stigma around surgery—echoed by culture and sometimes even clinicians—kept her in pain despite worsening Crohn's with fistulas. The turning point came with a loop ileostomy and near-instant relief: weight returned, pain lifted, and daily life felt possible again. That contrast fuels her mission to push back on misinformation, normalize ostomies, and help others avoid years of needless suffering. We explore how a personal blog became a movement. Gaylyn shares the moment she hit “send,” the flood of messages from people who finally felt seen, and how modeling with Aerie made ostomy visibility mainstream. Her nonprofit, Gutless and Glamorous, builds community through modern, welcoming spaces that don’t feel like traditional support groups, connecting patients who can check in when symptoms surge and silence sets in. Mental health takes center stage as Gaylyn unpacks the myth of “I should be able to handle this,” and we discuss why therapy and tools like EMDR can help after the crisis has passed. Chronic illness can be isolating; community is part of care. Expect candid talk about advocacy, ostomy life, body image, and the courage to redefine normal on your own terms. If this conversation resonates, tap follow, share it with someone who needs it, and leave a review—your voice helps more people find the support they deserve. Links: Gutless and Glamorous websiteGaylyn on InstagramMore of Gaylyn's story in Elle magazineGaylyn in The Might Let's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

Send us a text What does great IBD care look like when the system won’t make it easy? We sit down with Dr. Adam Ehrlich, Section Chief of Gastroenterology at Temple Health and GI fellowship program director, to explore how he builds patient-centered care in an underserved setting—where insurance denials, missing records, and real-life logistics collide with complex disease. We talk about health literacy, trust, and the conversations that actually change outcomes. Adam explains how he frames risks and benefits with clarity, why the “risks of doing nothing” deserve equal airtime, and how he balances mode of therapy—IV, subcutaneous, or oral—against lifestyle, trauma history, pregnancy plans, and coverage rules. We dig into prison medicine’s constraints, from medication access to policy barriers around scheduling, and the creative problem-solving required to keep patients safe and informed. He shares why being honest about uncertainty builds credibility, and how an early investment in patient education pays off with better monitoring and shared targets for remission. The episode also gets practical about personalization. We discuss drug levels with infliximab when severe colitis “loses” medication into the stool, when it’s wise to de-escalate dosing, and how habits from flare days can persist after inflammation settles. Adam offers tools to retrain routines, navigate IBS overlap, and align care with quality of life goals like driving, work travel, and showing up at a kid’s soccer game without anxiety. As a fellowship director, he reveals how he equips new gastroenterologists to handle today’s broader therapy menu, think beyond flowcharts, and advocate through insurance barriers with persistence and purpose. If this conversation resonates, tap follow, share it with someone who needs it, and leave a quick review. Your support helps more people find practical, human-centered IBD care. Links and organizations to follow! Color of Gastrointestinal Illness (COGI)The Stephanie A. Wynn Foundation Strategic Alliance for Intercultural Advocacy in GILet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

Send us a text The hardest part isn’t always the pain; it’s the fog—those days when the labels keep changing, the meds blur together, and the bills are louder than your body. That’s where Stephanie A. Wynn stepped in, transforming her Crohn’s journey into a movement for clarity, access, and equity. We sit down with Stephanie—author, podcaster, and founder of the Stephanie A. Wynn Foundation—to unpack how a misdiagnosis spiral, two heartbreaking pregnancy losses, and a sixth GI finally led to answers and action. She walks us through the IBD Patient Navigator Program she built to connect people with the care team they actually need: GI, primary care, mental health, dietitian, pelvic floor therapist, and, when needed, a colorectal surgeon. We talk about practical tools that change outcomes—recording appointments, coming with three priority questions, tracking symptoms and meals, and learning your labs so they can become signals instead of mysteries. Stephanie also opens up her book Navigating IBD: A Six-Week Blueprint for Better Gut Health which she designed to slow overwhelm and teach the language of care including treatment decisions, and what “knowing your numbers” truly means. We dig into clinical trials—why she calls it clinical research, how to qualify, what to ask about aftercare, and ways to participate through labs or tissue samples to boost representation. We tackle health disparities and social determinants of health head-on: transportation, refrigeration for meds, school support, and why trust is built by showing up with real solutions. This is a conversation about agency and community for anyone living with Crohn’s disease or ulcerative colitis. You’ll leave with a sharper checklist, a stronger voice, and a reminder that you are not alone—and that the right tools and team can change everything. If this helped you, follow the show, leave a quick review, and share it with someone who needs a clear path forward today. Links: Link to Stephanie's IBD bookThe Stephanie A. Wynn FoundationRacial and Ethnic Disparities in Medical Advancements and Technologies-Let's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

Send us a text Welcome to episode 1 of our series- IBD Can Eat Me guest hosted by Stacey Collins, IBD RD. In this series, Stacey will interview other Dietitians who also specialize in IBD. This week we welcomed Venus Kalami- board-certified pediatric Dietitian Nutritionist! What if the strict diet you’re told to follow does more harm than good? We sit down with pediatric dietitian Venus to unpack how nutrition in IBD can support health without sacrificing joy, culture, or family life. From Stanford Children’s IBD and celiac center to medical affairs and public education, Venus brings a rare mix of clinical depth and human warmth—and she doesn’t shy away from hard truths. We dig into the pressure families feel to “do everything,” the overuse of restrictive therapeutic diets, and the real risks that come with them: malnutrition, ARFID, pediatric feeding disorders, and lasting food trauma. Venus shares a clear way to tell the difference between a transient food reaction and an inflammatory flare, helping patients step off the rollercoaster of fear and over-correction. She also shows how to make care culturally inclusive with simple, powerful questions: What do you like? What do you cook? What feels doable at home? It’s a move from generic handouts to plans that honor heritage foods and real life. You’ll hear a vivid case study where a patient referred for low FODMAP improved dramatically without elimination—just lactase with dairy, spreading fruit across the day, and changing other patterns developed from past food trauma. We talk about involving mental health early, “asking around the ask” when supplements come up, and borrowing pediatric best practices for adults who shouldn’t have to navigate IBD alone. The theme running through it all: patients deserve permission to dream beyond survival. Biomarkers matter, but so do birthdays, travel, and the comfort foods that make you feel at home. If this conversation resonates, follow the show, share it with someone who needs a gentler path, and leave a review to help more people find evidence-based, humane IBD care. Your feedback shapes future episodes—what question should we tackle next? Nutrition Pearls podcast with VenusVenus on XSolid Starts appOffering Nutritional Therapies to Patients with IBD: Even If You're Not An Expert"Let's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

Send us a text Want a clear, human guide to modern IBD care without the jargon? We’re joined by Janette Villalon, a physician assistant at UC Irvine’s IBD Center, who brings a front-line view of what truly helps patients: personalized therapy choices, honest safety talk, and practical plans that fit real life. She traces the evolution from a handful of anti-TNFs to a wider toolkit—anti-integrins, IL-12/23 and IL-23 inhibitors, JAK inhibitors, and S1P modulators—and explains how we match treatments to goals like fast relief, fewer side effects, and coverage of extraintestinal issues such as arthritis, uveitis, and psoriasis. We dig into how APPs power the day-to-day of IBD clinics, from education to monitoring and rapid access, and how the GHAPP Conference and national societies elevated advanced practice training. Janette breaks down when clinical trials make sense, why strict inclusion criteria matter, and how logistics can steer decisions when someone is very sick. She demystifies biosimilars, outlining FDA standards that support confident switches when insurance demands it, and shares how she helps patients balance infusions, injections, or pills against travel, work, and adherence. For those planning a family, Janette offers timely guidance: aim for clinical and endoscopic remission three to six months before conception, continue pregnancy-safe maintenance therapy, and discuss starting low-dose aspirin at 12 to 16 weeks to lower preeclampsia risk, coordinated with maternal-fetal medicine. Looking ahead, we explore precision medicine and AI—predictive markers, microbiome insights, and smarter monitoring that could reduce trial-and-error and catch flares early. The throughline is empowerment: ask questions, read, return for follow-ups, and shape your care around your life. We close with community resources from the Crohn’s & Colitis Foundation and a shout-out to Camp Oasis for young patients. If this conversation helped you, subscribe, share it with a friend, and leave a quick review—what’s the one topic you want us to go deeper on next? Links: Gastroenterology & Hepatology Advanced Practice ProvidersCamp Oasis-IBD Medication GuidePregnancy & IBD videoLet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

Send us a text A boxer in training. A terrifying spiral of symptoms. A life-saving surgery that changed everything. Jose Torres joins us to share how ulcerative colitis pulled him out of the ring and propelled him into purpose—building community, advancing equity, and living well with a J‑pouch in a city that isn’t designed for urgent needs. We trace Jose’s path from misdiagnosis in Brooklyn to specialized care in Manhattan and the brutal logistics of public transit without bathrooms. He opens up about the cultural currents in his Mexican and Puerto Rican family—why speaking up took time, why steroids raised tough questions, and how food traditions collided with new IBD realities. The story turns on resilience: a colectomy and J‑pouch, early pouchitis, iron infusions, and then a decade of medication-free stability supported by smart nutrition, consistent exercise, and honest attention to mental health. Jose also brings us inside the Crohn’s & Colitis Foundation—from literally ringing the office doorbell to roles in advancement, business development, and DEI leadership. We talk about real lived experience, research into disparities, and why culturally fluent care changes outcomes. Along the way, he shares practical tactics for managing frequency, a nudge toward pelvic floor physical therapy, and a grounded philosophy: don’t chase perfection, cultivate accountability and hope. If stories of grit, culture, and community help you feel less alone with IBD, this one’s for you. Cheers! Links: Camp Oasis- Crohn's & Colitis Foundation USACamp Purple- Crohn's & Colitis Foundation New ZealandIBD in the Hispanic Community with Dr. Oriana Damas"Let's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

Send us a text Imagine being able to turn down the volume on gut pain, food fear, and medical anxiety—without white-knuckle coping or guesswork. We sit down with Dr. Ali Navidi, co-founder of GIpsychology.com and past president of the Northern Virginia Society of Clinical Hypnosis, to unpack how clinical hypnosis and gut-focused CBT help people with inflammatory bowel disease interrupt the gut-brain loop that keeps symptoms alive. No stage tricks here—just practical tools that retrain the nervous system, reduce visceral hypersensitivity, and restore a sense of control. We explore the real differences between stage and clinical hypnosis and why trance is a natural state you already know how to access. Dr. Navidi explains how anchors—a simple conditioned cue—can trigger a calming response within seconds, whether you’re prepping for a colonoscopy, calling the insurance company, or navigating an unexpected flare. We dig into disorders of gut-brain interaction (DGBIs) that can drive symptoms even when labs look great, and why gut-focused CBT plus hypnosis outperforms one-size-fits-all mental health approaches for persistent GI distress. Trauma and nocebo effects show up in subtle ways across the IBD journey. We get candid about medical trauma, memory reconsolidation, EMDR as a hypnotic protocol, and how conditioned food sensitivities form—like the “pizza panic” that lingers long after a flare. You’ll hear how to calm hypervigilance, rebuild trust with your body, and reintroduce foods safely. We also share details on a new eight-week telehealth group, created with the Crohn’s & Colitis Foundation and the American College of Gastroenterology, that pairs weekly skills training with recorded hypnosis sessions for daily practice. Ready to try tools that actually change how your system reacts? Follow, share with a friend who needs hope, and leave a review to help others find the show. Your story might be the anchor someone else needs today. Links: Information about the IBD Psychotherapy GroupInformation on Disorder of the Gut-Brain Interaction (DGBI)GI Psychology Let's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

Send us a text Comedian Ian Goldstein takes us through his journey with Crohn's disease, beginning with his diagnosis at 16 when he was just trying to navigate the already challenging world of high school, SATs, and planning for college. With candid humor, he recounts the moment he realized something was seriously wrong – not just from frequent bathroom trips, but when a coworker pointed out his dramatic weight loss. What follows is a rollercoaster of medical experiences that many in the IBD community will recognize – from the shock of needing a colonoscopy as a teenager to the trial and error of finding effective medications. Ian vividly describes his first major bowel obstruction during his senior year of college, complete with what he calls the "modern-day torture device" known as an NG tube. Despite his best efforts to manage his condition through diet alone, he eventually required surgery in 2022 to remove seven strictures from his small intestine. The conversation takes a fascinating turn when Ian shares how he's transformed his medical journey into comedy shows. From "The Autoimmune Saloon" to a celebration party for meeting his healthcare deductible (complete with custom cupcakes and hats), he's found ways to create community while addressing serious issues like medical debt. These creative outlets not only helped him process his experiences but connected him with others who could offer crucial advice about doctors and treatments. Perhaps most valuable are Ian's insights about navigating the healthcare system with a chronic illness. He speaks honestly about the frustration of insurance denials, the anxiety of unexpected medical bills, and the challenges of having an invisible disability. His experiences highlight the importance of self-advocacy, finding the right medical team, and building a supportive community. Ready to laugh, cry, and feel a little less alone in your IBD journey? Listen as Ian shares his practical wisdom: record your doctor appointments to remember important information, and seek out community connections that might literally change your life. Whether you're newly diagnosed or a veteran of chronic illness, this conversation reminds us all that finding humor in dark places might be our most powerful medicine. Links: Ian's websiteNew York Times articleThe Squeaky WheelTina's episode with usDr. David Schwartzberg's episode with usNicole's episode with usLet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

Send us a text Imagine visiting your gastroenterologist and feeling comfortable enough to discuss every aspect of how IBD affects your life—including your sexual health and practices. For many patients, particularly those in the LGBTQI+ community, this remains an elusive dream rather than reality. Dr. Victor Chedid, gastroenterologist and director of Mayo Clinic's Pride Clinic, joins Bowel Moments to tackle this crucial gap in IBD care. With disarming honesty and clinical expertise, he reveals why addressing sexuality isn't just about inclusivity—it's about providing complete medical care. When 95% of providers believe discussing sexual health is important but only 27% actually do it, patients suffer in silence with questions that directly impact their quality of life. The conversation dives deep into practical approaches for both patients and providers. Dr. Chedid shares his framework for discussing sexual practices with patients, from the straightforward question "What do you do for sex?" to navigating complex conversations around surgical interventions like J-pouch formation. For transgender patients, he unpacks recent research on gender-affirming hormones and IBD, emphasizing that life-saving gender-affirming care should never be withheld due to IBD concerns. Perhaps most compelling is Dr. Chedid's perspective on cultural humility and intersectionality. Each patient's experience is shaped by multiple overlapping identities—their sexuality, gender, race, nationality, and more. Rather than making assumptions, he advocates for providers to "leave their biases at the door" and approach each person's unique situation with curiosity and respect. "People living with IBD are the experts of their own bodies," Dr. Chedid reminds us in his powerful closing thoughts. "When they say something feels off, it's not a guess—it's lived experience." This principle forms the foundation of truly inclusive care—care that sees patients as whole people deserving of dignity, understanding, and comprehensive treatment. Ready to advocate for more inclusive IBD care? Share this episode with your healthcare team and join the conversation about creating safe spaces for everyone in our community. Links: AGA's Pride Month Provider Spotlight on Dr. ChedidDr. Chedid talking about forming the IBD Pride ClinicYour Top 6 Questions Answered by Dr. Victor ChedidLet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

Send us a text For two decades, Rachel Gebhardt has navigated the complex terrain of Crohn's disease with a refreshing perspective shaped by her father's experience with the same condition. Where her father let illness define him, Rachel chose a different path—one filled with humor, openness, and resilience—despite her case being more medically severe. Rachel's journey encompasses four bowel surgeries and fourteen hospital admissions since 2020 alone, including a colostomy she affectionately named "Whoopie." With disarming candor, she shares the moment her surgeon showed her a photo of a woman in an American flag bikini with a matching ostomy bag cover as encouragement—a moment that eventually inspired her own celebratory beachside photo years later. Through skin infections, bowel obstructions, and dietary restrictions, Rachel maintains her commitment to living fully and modeling positive coping for her children. The military healthcare system presented unique challenges, but also connected Rachel with Dr. Anish Patel at Brook Army Medical Center, who became not just her gastroenterologist but her advocate and ally. Their relationship exemplifies the profound difference compassionate, specialized care makes for patients with complex conditions. Rachel details her experience with hyperbaric treatments, medication complications, and the surprising remission she experienced only during pregnancy and breastfeeding—highlighting the understudied connection between hormones and IBD. What resonates most deeply is Rachel's transformation from initially viewing her ostomy as "the end of the world" to embracing it as a source of freedom. Now training for a half marathon and hiking mountains previously inaccessible when bathroom urgency controlled her life, she's become an outspoken advocate for ostomy awareness. Her message is clear and powerful: life with an ostomy can be not just manageable, but genuinely good—a perspective desperately needed by those facing similar paths. For anyone navigating IBD or supporting someone who is, Rachel's story offers both practical wisdom and heartening hope. Links: United Ostomy AssociationOur episode with Dr. Anish PatelPregnancy and Crohn's Pregnancy & Breastfeeding infoLet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

Send us a text What happens when your body declares war on multiple organs? Julie Davis knows this reality all too well. Her medical journey began with a celiac disease diagnosis at 18, followed by ulcerative colitis in college, but it was the sudden onset of autoimmune pancreatitis in 2011 that turned her world upside down. Julie's story is remarkable not just for the rare combination of conditions she manages, but for the extraordinary resilience she's shown throughout her journey. As a dietitian who became a physician's assistant while battling debilitating pancreatitis flares, Julie brings unique perspective from both sides of healthcare. She takes us through the harrowing experience of multiple hospitalizations, specialists puzzling over her case at Mayo Clinic, and ultimately, the life-altering decision to have her pancreas completely removed in 2023. The procedure—called total pancreatectomy with islet cell autotransplantation—is so rare that Julie couldn't find a single podcast about it. Her pancreatic cells were extracted and transplanted into her liver, turning her into what she describes as "essentially a type 1 diabetic" overnight. Despite this dramatic medical intervention and the insulin pump she now relies on, Julie's perspective remains incredibly positive. Perhaps most inspiring is how Julie has refused to let her health conditions define her limitations. She completed PA school despite having an endoscopy and nerve block the same morning as important exams. She had three children through IVF while managing multiple autoimmune conditions. And today, she's passing on her hard-won wisdom to her daughter, who has inherited celiac disease. Julie's message to fellow chronic illness warriors rings clear: "It doesn't define you. You can still do things that you love." Her extraordinary journey demonstrates that even the most complex medical challenges can't stand in the way of a determined spirit pursuing a fulfilling career, family life, and future. Links: The Juicebox PodcastMission Cure:Let's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

Send us a text ** Warning that this episode talks very candidly and descriptively about surgery and more.** Few IBD stories contain as many twists, complications, and near-death experiences as Bryan Schulze's journey with ulcerative colitis. What began with occasional bleeding during his military deployment escalated into a life-threatening medical emergency when doctors discovered he had been hemorrhaging internally for months. With severe anemia and barely conscious, Bryan's introduction to IBD came with a stark realization — he had been slowly dying without knowing it. Bryan's candid account takes us through the harrowing reality of military service with undiagnosed IBD, the struggle to maintain dignity while bleeding profusely, and the complex surgeries that followed. After medication failures and complications that defy belief, Bryan underwent a full colectomy and J-pouch surgery that led to severe complications including a massive abdominal infection, wound vacuum treatments, and catastrophic surgical errors. Beyond the physical trauma, Bryan shares the emotional and professional toll of IBD. From workplace discrimination to failed career dreams, steroid-induced diabetes to heart failure, and battles with depression and anxiety — his story encompasses the full spectrum of challenges IBD patients may face. Yet through it all, Bryan found his way back through support from his family, reconnection with his faith, and an indomitable will to live. Now serving as a police officer with a permanent ostomy bag, Bryan offers powerful wisdom to fellow IBD warriors: "Take a deep breath. It's not a life ender. It is a life changer. Be willing to adapt with it so that you can overcome it and still live the life that you were given to live." His message of resilience serves as a beacon for anyone facing seemingly insurmountable health challenges. Have you been struggling with IBD? Share your story or questions with us, and remember that no matter how difficult your journey, you're never alone in this fight. Links: Our episode with Dr. Anish PatelOur episode with Matty Bowels!Veterans with IBD Support GroupAbout IBD Podcast episode with Dr. Anish PatelJohn's story of serving in the Royal Marines in the UKLet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!

Send us a text Kimberly LaRose's journey from a nine-year diagnostic odyssey to creating an award-winning vodka demonstrates the remarkable resilience found in the IBD community. After struggling with unexplained symptoms that doctors repeatedly misdiagnosed, Kimberly finally received her Crohn's disease diagnosis and discovered that gluten and corn were major inflammation triggers for her body. Rather than seeing her dietary restrictions as limitations, Kimberly embraced a philosophy of "replacing, not removing." This positive mindset would prove transformative when she attended an event where she couldn't eat or drink anything due to her restrictions. What began as a half-joking call to a friend about creating their own vodka evolved into Wisher Vodka – a sugar beet-based spirit that's gluten-free, grain-free, and vegan. The path from concept to award-winning product wasn't simple. Kimberly and her co-founder Emily researched 300 distillers, visited 60 personally, and developed a unique production process that includes lab testing every batch to ensure purity. Their commitment to quality and transparency has earned them multiple prestigious awards, including Grand Vodka of the Year with a remarkable 98-point taste rating from the Bartender Spirits Award. Beyond the business success, Kimberly's story highlights how health challenges can unexpectedly open new doors. "I wouldn't have created Wisher had I not been diagnosed with Crohn's," she reflects. Her work supporting the Crohn's and Colitis Foundation further demonstrates her commitment to the IBD community that sparked her entrepreneurial journey. Whether you're navigating dietary restrictions, seeking inspiration for managing chronic illness, or simply appreciate the story behind your spirits, Kimberly's journey reminds us that sometimes our greatest struggles lead to our most meaningful creations. Links: Sip with Confidence! - Wisher Vodka's websiteCocktail recipesLet's get social!! Follow us on Instagram! Follow us on Facebook! Follow us on Twitter!